Planning Considerations for Adult Children with Special Needs

Convergence Class |

Caring for adult children with special needs requires extensive planning and consideration to ensure their ongoing safety, well-being, and quality of life. As adult children with special needs reach adulthood, they face unique challenges and require customized support to help meet their daily needs, pursue their ambitions and goals, and enjoy greater independence. Here are some planning considerations for parents of adult children with special needs:

1. Future Planning

Families of adult children with special needs must engage in future planning to create a secure, safe environment for their child when they are no longer able to provide care. Estate planning, decision-making arrangements, and living plans are examples of considerations that ensure the continuity of essential care and support throughout the individual's lifetime

2. Financial Planning

Managing finances becomes crucial as an adult child with special needs relies on their income stream to support their quality of living. Eligibility for government assistance and social security benefits should be explored, managed, and monitored alongside any sources of funding and income unique to the individual.

3. Legal Considerations

Seek professional legal advice to ensure the adult child with special needs has the necessary legal arrangements in place. This may include reviewing state laws around guardianship and conservatorship, drafting a will or trust, setting up a Special Needs Trust if needed, and becoming familiar with the laws associated with disability.

4. Caregiver Planning

As parents age, they may be unable to provide care for their adult child with special needs. In-home care, respite care, and placement in a care facility may be necessary options to address adult child care needs. It would be best to start exploring these options early and include the individual in the planning discussions.

5. Medical Management

Medical management requires collaboration among medical professionals, caregivers, and loved ones. Physicians who specialize in the care of individuals with special needs should provide comprehensive care for the individual's health, interrelated with their overall wellbeing.

6. Social Relationships

As individuals with special needs grow older, social isolation often occurs; developing social relationships such as engaging in community supports and interest groups, local arts and cultural programs, and social activities can provide a fulfilling social life.

7. Transportation

As adults, individuals with special needs requiring specialized transportation need to be factored into future planning considerations. Public transportation may not be a viable option for some; alternative transportation services may need to be considered.

8. Employment Opportunities

As individuals with special needs transition into their adult lives, their employment options should be further enhanced. Collaboration with Employment specialists counselors and job development professionals can identify and create opportunities customized to the individual's apartment's goals and aspirations.

9. Assistive Technology

Advances in assistive technology significantly improve the quality of life for adults with special needs provide new levels of functional independence. Electronic aids to daily living, specially designed mobile apps, and other technological innovations improve communication, health monitoring, and overall quality of life.

10. Access to Community Resources

Community resources that provide support and advocacy are critical for parents and caregivers of adults with special needs. These programs may offer caregiver education, support groups, and other legal, financial, and emotional support services.

Caring for adult children with special needs can be daunting but not an impossible task, and with proper planning, education, and community resources, there is much support available to the caregiver, family, and individual themselves. Everyday life offers ongoing improvements in supportive and innovative services and supports that maintain or increase functional independence, enhancing the person's quality of life.


Ready to Join our Insiders List?

Get Started